Elise moves into a home of her own

Elise moves into a home of her own

Moving into your own home is a special milestone but for Elise Miller, it holds extra significance.

Elise has finally had the birthday party she’s dreamed of for so long, with friends, family and other supporters celebrating in her new purpose-built home.

The sociable 34-year-old has lived with her parents all her life but, according to her mother Vicki, had “clearly” reached the point where she was seeing too much of mum and dad.

Elise has severe cerebral palsy, epilepsy, a mild intellectual disability and is non-verbal but can communicate her needs to those who know her well.

“We bought the block of land a while back with this in mind and hired the architect three years ago, about the same time Elise joined the National Disability Insurance Scheme,” Vicki said.

“It’s taken a while but we wanted to be sure everything was just right, which it now is – the builder has done a really good job.”

Elise moved in at the beginning of August but Vicki had to find and train up a team of eight support workers who will be on hand to provide one-on-one care 24 hours a day, seven days a week in rotating shifts.

“She just loves her new place, she’s more mellow since she’s moved in,” Vicki said.

“Elise enjoys being out and about and likes company, especially when people are having fun. Now she’ll have the extra joy of having her friends over to her own home and having fun there.”

Vicki says she and her husband have built two houses on the block, one for Elise “and one for us to move into when we’re ready to properly retire.”

Elise’s home has three bedrooms and is entirely flat, removing the need for ramps, and also features wide doorways, wide hallways, floor-to-ceiling windows throughout, an accessible bathroom and a large open lounge/kitchen/dining area.

Her NDIS funding has paid for occupational therapy assessments, builder consultations, the installation of an overhead hoist between her bedroom and bathroom, plus key items such as a new bed and shower trolley.

Leftover track from Elise’s bedroom hoist installation has also been routed through to the lounge room so she can have ‘floor time’ there.

“One of the two extra bedrooms will be used by the support workers who stay over while the other will be their office to do reports and other paperwork,” Vicki said.

Elise’s new home is much closer to town, putting her within easy reach of the central business district.

She also has her own modified car that her support workers use to take her to various activities, including her day program.

“Elise spends five days a week with disability service provider Aruma – three days a week she’s out doing various activities with one-on-one support, and two days a week she participates in group activities,” Vicki said.

“She’s one of eight who have been together in that group for 15 years since they left school, and they’re good friends.”

For Vicki and her husband Phillip, Elise’s move into her own place marks the start of a new phase in their lives.

“I have a plan to set up a circle of support for Elise that will take over my role,” she said.

“It will have my two older daughters on it along with other key people, maybe six in total, and between them they’ll take charge of things like making sure her car is registered, that her house gets painted, that doctor’s appointments are made, that things get done when needed.”

Elise’s most recent NDIS plan funded a Support Coordinator for the first time, which has proved invaluable given the circumstances of Elise’s move against the background of the COVID lockdown.

Vicki also receives support from Elise’s Local Area Coordinator Belinda Separovic, who works for NDIS partner Social Futures.

Vicki chuckles wryly that Elise’s place will “probably become party central” once her routine is worked out.

“They’ll be able to have barbies, visit clubs, watch the footy, go to the movies, have charades nights, all the sorts of things that adults do socially which she hasn’t been able to do much of until now because she’s been stuck at home with us – and to be honest that’s boring for her,” Vicky said.

“Her comprehension is pretty good and over recent times she’s learnt to express herself better, so with all the support she’s got now she’ll be able to be a lot more independent.

“The support arrangements we’ve put in place will really allow her to live her own life for the first time – she’ll be able to get up when she wants, do what she wants during the day and go to bed when she wants, just like anyone else in the community.”

“The support arrangements we’ve put in place will really allow her to live her own life for the first time – she’ll be able to get up when she wants, do what she wants during the day and go to bed when she wants, just like anyone else in the community.”

 

Vicki

Elise's mum

Social Futures is a National Disability Insurance Scheme Partner in the Community.
Our Local Area Coordination services connect participants to the NDIS in regional New South Wales.

To contact your nearest LAC call 1800 522 679

Read more participant stories

Elise moves into a home of her own

Moving into your own home is a special milestone but for Elise Miller, it holds extra significance. Elise has finally had the birthday party she's dreamed of for so long, with friends, family and other supporters celebrating in her new purpose-built home. The sociable...

read more

NDIS opens up a whole new life for Tasel

FOR many of us, 2020 may turn out to be a year we’d rather forget. But for Maclean woman Jacques Sears, things have never been better. Ms Sears, also known as Tasel, is deaf, but with the help of the National Disability Insurance Scheme her life has changed for the...

read more

Madeleine lands her dream job

Madeleine Thompson dreamed of becoming a nurse when she was still in primary school. Now she’s living the dream, having recently secured a permanent role as an Assistant in Nursing at St Joseph’s Nursing Home in the northern NSW town of Lismore. “I’m really enjoying...

read more

Tackling bullying one class at a time

Schools are looking toward an inclusive future thanks to awareness program, ‘Different on the Outside but the Same on the Inside’. Many of us saw the distraught video of nine year old Quaden Bayles and our hearts wrenched seeing the effect of bullying upon a young...

read more

Care factor makes all the difference for Rocky

In 1996, at 29 years of age, Rocky Mileto sustained a severe spinal cord injury from a tackle in a game of rugby union. “I had the ball, it was one on one. Just the wrong angle, wrong timing,” Rocky said. “It was that easy, that simple.  Most injuries, rugby or rugby...

read more
NDIS opens up a whole new life for Tasel

NDIS opens up a whole new life for Tasel

FOR many of us, 2020 may turn out to be a year we’d rather forget. But for Maclean woman Jacques Sears, things have never been better.

Ms Sears, also known as Tasel, is deaf, but with the help of the National Disability Insurance Scheme her life has changed for the better.

With the birth of her third child only seven weeks away, change has come at just the right time.

FOR many of us, 2020 may turn out to be a year we’d rather forget. But for Maclean woman Jacques Sears, things have never been better.

Ms Sears, also known as Tasel, is deaf, but with the help of the National Disability Insurance Scheme her life has changed for the better.

With the birth of her third child only seven weeks away, change has come at just the right time.

Tasel said in the past she didn’t have interpreters or funding to help, but thanks to NDIS local area co-ordinator Libby McPhee, from Social Futures, Tasel now has the support she needs.

The 38-year-old uses her NDIS funding for interpretation services, community participation and to purchase assistive technologies.

“They really understood what I needed as a deaf person to be well supported,” she said.

“It’s much better, much improved, thanks to Hilary (my interpreter) and Libby my LAC for their wonderful help.

“It feels different. I’m happier. I can book interpreters, I can train my dog to be a service dog for me – the NDIS has enabled me to do that.”

Jacques Sears with her service dog Sasha.

Tasel’s service dog, Sasha, is a nine-month-old German Shepherd and with help from the NDIS, Sasha is learning sign and voice commands through a local trainer, Grace from K9.

Sasha will then get a vibrating collar to alert her when Tasel wants to communicate with her. As a fully-fledged access dog, Sasha will have a special access dog uniform to identify her.

“It’s really exciting,” Tasel said.

“Training my dog to be a service dog would cost too much without the NDIS, so it is amazing now the NDIS is covering it, and I’m stress free from that worry,” she added.

That’s not the only exciting news Tasel has to share. In just seven weeks she is due to have a baby.

“It’s very active, always punching, kicking and moving around in there,” she said.

“It’s a little boy. We have a name but we’re keeping it secret until the birth.”

Tasel also has a 19-year-old son, Hulieo, living in Canberra and a 16-year-old daughter LaToiah, who lives with her in Maclean.

For Hulieo and LaToiah’s birth, Tasel said she communicated with her doctor writing on paper or the doctor would talk slower so she could lip-read.

Tasel’s partner, Marcus, also helped through the birth, telling her what doctors were saying.

The birth of this new child promises to be a whole different experience for Tasel.

“All of the ongoing appointments I have for the baby I can now have interpreters for, funded through the NDIS, so I feel more confident going through all of these appointments,” Tasel said.

“I can understand what the doctors are telling me. I’m really happy. It’s been such a change for me. I’m feeling really comfortable and good about this – well supported.”

The NDIS has also provided assistive technology funding to support Tasel after her baby is born.

“I have an iPad which means I can book interpreters independently. It’s good to have technology I can use for relay technology, which helps me living remotely,” she said.

Through her assistive technology funding, Tasel has also purchased a baby alarm.

“A receptor is worn on my wrist and one around my waist, and through flashing and vibrating it will wake me when the baby is crying,” she said.

“I also have two doorbells which link to my phone so if somebody is at the door I can see who is there.”

Tasel said her support co-ordinator is currently looking for new accommodation for her daughter, and her newborn, and the new property will have front and back door alarms fitted.

“People use the back door generally because deaf people won’t hear people at the front,” Tasel said.

“That’s why I now have a back and front door alarm. It is a safety thing too. I have funding for a fire alarm also – a flashing light – to fit to the new property once we find it.”

In the future, Tasel plans to learn creative writing through TAFE, but for now her focus will be on her family.

Social Futures is a National Disability Insurance Scheme Partner in the Community.
Our Local Area Coordination services connect participants to the NDIS in regional New South Wales.

To contact your nearest LAC call 1800 522 679

Read more participant stories

Elise moves into a home of her own

Moving into your own home is a special milestone but for Elise Miller, it holds extra significance. Elise has finally had the birthday party she's dreamed of for so long, with friends, family and other supporters celebrating in her new purpose-built home. The sociable...

read more

NDIS opens up a whole new life for Tasel

FOR many of us, 2020 may turn out to be a year we’d rather forget. But for Maclean woman Jacques Sears, things have never been better. Ms Sears, also known as Tasel, is deaf, but with the help of the National Disability Insurance Scheme her life has changed for the...

read more

Madeleine lands her dream job

Madeleine Thompson dreamed of becoming a nurse when she was still in primary school. Now she’s living the dream, having recently secured a permanent role as an Assistant in Nursing at St Joseph’s Nursing Home in the northern NSW town of Lismore. “I’m really enjoying...

read more

Tackling bullying one class at a time

Schools are looking toward an inclusive future thanks to awareness program, ‘Different on the Outside but the Same on the Inside’. Many of us saw the distraught video of nine year old Quaden Bayles and our hearts wrenched seeing the effect of bullying upon a young...

read more

Care factor makes all the difference for Rocky

In 1996, at 29 years of age, Rocky Mileto sustained a severe spinal cord injury from a tackle in a game of rugby union. “I had the ball, it was one on one. Just the wrong angle, wrong timing,” Rocky said. “It was that easy, that simple.  Most injuries, rugby or rugby...

read more

Get new stories from NDIS Participants in your inbox

* indicates required



How our local services stayed connected through COVID-19

How our local services stayed connected through COVID-19

While individuals and households were adjusting to the new reality of social isolation as the COVID-19 pandemic hit, human service organisations were scrambling to figure out how best to keep supporting our most vulnerable community members despite physical distancing restrictions.

Social Futures is a social services provider based in regional NSW. We wanted to do something to help other local organisations get prepared and meet the challenges emerging from the health crisis.

Through our existing Better Chances Forum which is convened by Social Futures, we were able to provide a fortnightly online meeting space where local services could connect, collaborate and support each other.

The use of the Better Chances Forum was important because it brings together sector professionals who work with vulnerable children, young people and families – where there are heightened concerns about the risk of homelessness, domestic and family violence and disengagement from school and community as a result of the lockdown and economic impacts.

Almost fifty professionals from 24 organisations have connected with the sessions  since we began holding them in early April.

The sessions have helped to break down barriers and raise awareness in the sector of additional resources and assistance available to support the families they work with.

As a sector, we were able to more quickly identify emerging trends, such as an increase in child wellbeing reports, and find solutions together.

One challenge was the difficulty many young people faced remaining connected and engaged with education during lockdown.

For children and young people who are at risk, schools can be an important way to connect with their families and offer the right supports. We often say that a school’s duty of care shouldn’t stop at the school gate, but even when students returned to school, parents were being asked to not enter the school grounds and make drop-off and pick-up as quick as possible.

We recognised that teachers needed additional support so we used our online Community-Hub to create a collaborative information pack for schools with details of all the services and resources available in their local area to help them reach out and support their students and families.

Some other actions emerging from the sessions were collecting data and research about how local communities were impacted by COVID-19 to share with government and peak welfare bodies, coordinating care packs for families, working to connect families to early intervention services and legal advice to minimise negative impacts, and liaising with local police around young people who may be out in public during lockdown.

We will continue to provide the online meeting space as we transition out of lockdown and adapt to the new world of physical distancing. While it has undoubtedly been a challenging time, we have also seen some positives in embracing new technologies and new ways of working. While online forums, teleconferences and telehealth have been around for a long time, the lockdown has forced many workers and community members to try these platforms for the first time and see the benefits of being able to connect and collaborate with services, expertise and peers remotely.

As an organisation and a sector we don’t see the goal as eventually ‘going back to the way things were’ but rather embracing a new way of working that holds onto what we have learnt through this experience to become more inclusive, effective and connected.

Madeleine lands her dream job

Madeleine lands her dream job

Madeleine Thompson dreamed of becoming a nurse when she was still in primary school. Now she’s living the dream, having recently secured a permanent role as an Assistant in Nursing at St Joseph’s Nursing Home in the northern NSW town of Lismore.

“I’m really enjoying it,” Madeleine says. “I’m on nights three or four shifts a week which has taken a bit of adjustment, eight hours each shift and finishing at 7.30am.”

To get to where she is now hasn’t been an easy road for Madeleine, now 20. She was diagnosed with attention deficit hyperactivity disorder (ADHD) and autism/Aspergers while in primary school, and struggled with understanding social cues and maintaining friendships throughout her school years.

“I had to move schools due to bullying,” Madeleine says. “My diagnosis is a lot less common in females than males and it just marked me out as different to anyone else in my peer group.

“My autism is very mild but the ADHD did affect my ability to focus on schoolwork, plus the classroom environment could be a bit difficult due to my heightened sensitivity to noises and other distractions – things like tapping pens, clicking heels or certain smells.”

Madeleine joined the National Disability Insurance Scheme when it rolled out across the Northern Rivers region in 2017 and has been supported by NDIS Local Area Coordinator partner in the community Social Futures since then.

“I spent most of my high school years at a school where they gave me a lot of educational support but the therapeutic supports I receive through my NDIS plan have been really good for my social skills,” she says.

“Since leaving school at the end of 2018 I’ve put a plan manager in place and now make my own decisions about the supports I receive, with support from my Local Area Coordinator, Trudy, as required.”

After finishing school she enrolled in a six-month TAFE course to gain her Health Services Assistant in Aged and Acute Care Certificate while working part-time. Her course included a week’s work placement at St Vincent’s Hospital in Lismore and another week at St Joseph’s, before graduating in December 2019.

“The aged care manager at St Joseph’s asked me at the end of my work placement whether I would consider applying for a job there,” she says. “At the time I was more interested in pursuing the clinical side but I decided to apply anyway.

“I missed the application deadline but they said they’d look at all the resumés again in January this year. In mid-February I got a call to attend an interview, which I passed, provided my references, attended the induction day – and now here I am!

“All the residents in my wing have dementia and they’re mostly asleep during the night. There’s 45 residents in total with me and another person on hand if they need any assistance with personal care, settling them or helping them with anything.”

Madeleine says social relationships remain her biggest struggle.

“I’ve got a social worker, a psychologist and a psychiatrist funded under my plan and the psychologist in particular has been really good at helping me with strategies to get through the social stuff,” she says. “If I need a bit of extra help, she’s there for me.

“Having said that I’ve had no issues at all in my workplace, they’re all really supportive and lovely people and I one hundred per cent enjoy working there. They’re all very caring.”

Outside work, Madeleine has now found her own place to live and enjoys listening to music and riding her horse – “those two things are really good for self-therapy”.

“I adopted a horse about a year ago, he’s called Clancy,” she says, adding that one day she wants to own more horses on her own farm, “but you have to be rich for that!”

In the meantime she’s focused on her nursing career.

“I’ve loved the journey so far and it will set me up for what I want to do later on,” she says. “I’m aiming to work in my current role for a year, then study registered nursing at Southern Cross Uni in Lismore while continuing to work part time.

“I’ve always loved little kids but never wanted to be a primary school teacher or a childcare worker – midwifery was always the big aim, so I could work with babies.”

“Working in remote areas would be pretty cool too.”

The NDIS provides Australians who have a permanent and significant disability with the supports they need to live more independently and to increase their social and economic participation.

The NDIS is providing support to almost 120,000 people across NSW. There are almost 365,000 people benefiting from the NDIS nationally, including more than 154,000 people who are receiving support for the first time.

Social Futures is a National Disability Insurance Scheme Partner in the Community.
Our Local Area Coordination services connect participants to the NDIS in regional New South Wales.

To contact your nearest LAC call 1800 522 679

Read more participant stories

Elise moves into a home of her own

Moving into your own home is a special milestone but for Elise Miller, it holds extra significance. Elise has finally had the birthday party she's dreamed of for so long, with friends, family and other supporters celebrating in her new purpose-built home. The sociable...

read more

NDIS opens up a whole new life for Tasel

FOR many of us, 2020 may turn out to be a year we’d rather forget. But for Maclean woman Jacques Sears, things have never been better. Ms Sears, also known as Tasel, is deaf, but with the help of the National Disability Insurance Scheme her life has changed for the...

read more

Madeleine lands her dream job

Madeleine Thompson dreamed of becoming a nurse when she was still in primary school. Now she’s living the dream, having recently secured a permanent role as an Assistant in Nursing at St Joseph’s Nursing Home in the northern NSW town of Lismore. “I’m really enjoying...

read more

Tackling bullying one class at a time

Schools are looking toward an inclusive future thanks to awareness program, ‘Different on the Outside but the Same on the Inside’. Many of us saw the distraught video of nine year old Quaden Bayles and our hearts wrenched seeing the effect of bullying upon a young...

read more

Care factor makes all the difference for Rocky

In 1996, at 29 years of age, Rocky Mileto sustained a severe spinal cord injury from a tackle in a game of rugby union. “I had the ball, it was one on one. Just the wrong angle, wrong timing,” Rocky said. “It was that easy, that simple.  Most injuries, rugby or rugby...

read more

Get new stories from NDIS Participants in your inbox

* indicates required



Tackling bullying one class at a time

Tackling bullying one class at a time

Schools are looking toward an inclusive future thanks to awareness program, ‘Different on the Outside but the Same on the Inside’.

Many of us saw the distraught video of nine year old Quaden Bayles and our hearts wrenched seeing the effect of bullying upon a young person. The video, which has been viewed 2.5 million times and shared by more than 65,000 people, highlighted how just damaging bullying can be and the dire need for education in schools.

Happily, Quaden’s story appeared to land on a bright note with support flowing in from around the world. But Quaden’s case is one in many, and bullying for people with a disability is overwhelmingly common and debilitating. 

Young people with a disability are more likely than their peers to have poor mental health[1] and recent research[2] suggests almost half of the poorer mental health we see in teenagers with a disability is due to bullying.

But a new program being delivered by Social Futures aims to tackle bullying head on.

The ‘Different on the Outside but the Same on the Inside’ program is the brain child of Social Futures Local Area Coordinator, Prue McCarthy. An educational inclusion awareness program about disability designed for children 8-11 years, this program has been received with enthusiasm by schools in Western NSW.

‘Different on the Outside but the Same on the Inside’ introduces young people to different types of disability. It uses activities and games to teach children empathy and help them to gain an understanding of what it is like to live with a disability. 

“I wanted children to realise that people with a disability are just the same as everyone else”, says Prue, “and I hope they can carry this awareness with them through to their adult years and onto the next generation. The best place to make change into the future is with the children of today.”

One of the features making this program so successful is the opportunity for children to interact directly with a person with disability and to ask them open and honest questions.

“’What the hardest thing for you to do with having a disability?’ they often ask”, says Prue “or I’m commonly asked if I ever wished that I weren’t born with a disability.”

“This is why I like the program so much,” states Prue. “Because I am a presenter with a disability walking into the class room, I get to observe the students that might be laughing at me. But by the end of the program it is these children that are asking most of the questions to find out more about me and my disability.”

“I had one teacher tell me about a student who was hearing impaired but too embarrassed to wear his hearing-aides. But after I presented that student went up to his teacher and said “I think that I might start wearing my hearing-aides so I can learn more.” ”

“I know I have done my job well when I see students write on the evaluation forms, ‘people with disabilities can do anything they want to’ ” smiles Prue.

The program is currently delivered across the Orange NSW local government area with Social Futures looking to expand to Orana far west.

If your school would like to be involved, contact Social Futures on 1800 522 679.

[1] https://miami.pure.elsevier.com/en/publications/mental-health-issues-in-children-and-adolescents-with-chronic-ill

[2] https://academic.oup.com/ije/article/47/5/1402/5066450?guestAccessKey=92b80704-1fbd-4548-b41b-1fdcc02acbaa

Elise moves into a home of her own

Moving into your own home is a special milestone but for Elise Miller, it holds extra significance. Elise has finally had the birthday party she's dreamed of for so long, with friends, family and other supporters celebrating in her new purpose-built home. The sociable...

read more

NDIS opens up a whole new life for Tasel

FOR many of us, 2020 may turn out to be a year we’d rather forget. But for Maclean woman Jacques Sears, things have never been better. Ms Sears, also known as Tasel, is deaf, but with the help of the National Disability Insurance Scheme her life has changed for the...

read more

Madeleine lands her dream job

Madeleine Thompson dreamed of becoming a nurse when she was still in primary school. Now she’s living the dream, having recently secured a permanent role as an Assistant in Nursing at St Joseph’s Nursing Home in the northern NSW town of Lismore. “I’m really enjoying...

read more

Tackling bullying one class at a time

Schools are looking toward an inclusive future thanks to awareness program, ‘Different on the Outside but the Same on the Inside’. Many of us saw the distraught video of nine year old Quaden Bayles and our hearts wrenched seeing the effect of bullying upon a young...

read more

Care factor makes all the difference for Rocky

In 1996, at 29 years of age, Rocky Mileto sustained a severe spinal cord injury from a tackle in a game of rugby union. “I had the ball, it was one on one. Just the wrong angle, wrong timing,” Rocky said. “It was that easy, that simple.  Most injuries, rugby or rugby...

read more

Get new stories from NDIS Participants in your inbox

* indicates required



Northern Rivers transport guides

Northern Rivers transport guides

If you are looking for information about transport options in the Northern Rivers including bus routes, community and medical transport, taxi, coach and other services that operate in your area, visit goingplaces.org.au and download the transport guide for your region.

We have just updated the transport guides for the Ballina, Byron, Clarence, Kyogle, Lismore and Richmond regions to ensure they have the most up to date information about available services. There is also a guide available for Tweed provided by the Tweed Shire Council.

You can also use the link to the NSW Trip Planner to plan journeys using public transport.

This going places website is part of Social Futures Transport Development Project, a regional initiative funded by Transport for NSW, focused on reducing transport disadvantage and improving access to affordable transport options for residents of the Northern Rivers.

For more information about the Transport Development Project email [email protected]

Delivering services around COVID-19

Social Futures is committed to the continuation of delivering support services in a safe, practical and innovative way while navigating COVID-19.